Resources
Resources for Frontotemporal Degeneration.
Talking FTD is a monthly podcast for care partners of those with Frontotemporal Degeneration (FTD). This is a link to the recorded podcasts and their topics
A form to take to the doctor, filled out by caregiver.
Form to print
Hearing and dementia and speech
Hearing loss research
Hearing and dementia
Hearing leading to dementia
The 10 absolutes of dealing with someone with dementia
10 Absolutes
Hand out for August, 2018 series on placement options
Handout
Handout for August 2019 Stages of FTD
Handout 1
Handout 2
There is a FTD Care Chat every Monday and Saturday at 7:00pm ET in Zoom. You just need to login to Zoom meeting ID 706-974-0831 and use the password ftdchat. This is an informal chat with a moderator for your safety, so come when you can and stay as long as you like.
Caregiver's Guide to FTD by Geri Hall
Link to Guide
Getting to Diagnosis
Link
Increasing Chances for Functional Independence in FTD
Link to document
Language Strategies for PPA and bvFTD
Link to language strategies document
FTD Obsessive Behaviors
Link to obsessive behavior document
FTD through the eyes of someone diagnosed
Through the eyes of FTD
Link to Book suggestions
Helpful Books
Link to blog post
FTD blog post
Link to webinar on FTD
Beyond Alzheimer's
Link to AFTD webinar, A Journey to Diagnosis, Brade Boeve, MD
Webinar link
Link to AFTD Webinar, A Care Paradigm for persons with FTD, Alvin Holm, MD
Webinar link
Link to AFTD webinar bvFTD Subtypes: Divergent Anatomy, Divergent Behavior, Dr. Kate Rankin
Webinar link
Link to bvFTD Diagnosing, Staging
Link to diagnosing bvFTD
General information on FTD from NIH
Link to Frontotemporal information on NIH site
Letter I wrote to neighbors on diagnosis and what they could do to help.
Letter to neighbors
Teepa Snow talks FTD
May 2018 Teepa Journal
Teepa Snow recorded webinars
Teepa Snow Webinars
Link to GREAT explanation on lack of empathy in FTD!
https://www.youtube.com/watch?v=a_732-H1CUY&sns=fb
A young family affected by FTD
A Blog of a young family facing FTD
A podcast on what is FTD
What IS FTD??
UCSF explanation of FTD
Primer on FTD
New tool for diagnosis may be coming.
Research on new diagnostic tool
Talking FTD is a monthly podcast for care partners of those with Frontotemporal Degeneration (FTD). This is a link to the recorded podcasts and their topics
How do you emotionally survive FTD? Find out here
A form to take to the doctor, filled out by caregiver.
Form to print
Hearing and dementia and speech
Hearing loss research
Hearing and dementia
Hearing leading to dementia
The 10 absolutes of dealing with someone with dementia
10 Absolutes
Hand out for August, 2018 series on placement options
Handout
Handout for August 2019 Stages of FTD
Handout 1
Handout 2
There is a FTD Care Chat every Monday and Saturday at 7:00pm ET in Zoom. You just need to login to Zoom meeting ID 706-974-0831 and use the password ftdchat. This is an informal chat with a moderator for your safety, so come when you can and stay as long as you like.
Caregiver's Guide to FTD by Geri Hall
Link to Guide
Getting to Diagnosis
Link
Increasing Chances for Functional Independence in FTD
Link to document
Language Strategies for PPA and bvFTD
Link to language strategies document
FTD Obsessive Behaviors
Link to obsessive behavior document
FTD through the eyes of someone diagnosed
Through the eyes of FTD
Link to Book suggestions
Helpful Books
Link to blog post
FTD blog post
Link to webinar on FTD
Beyond Alzheimer's
Link to AFTD webinar, A Journey to Diagnosis, Brade Boeve, MD
Webinar link
Link to AFTD Webinar, A Care Paradigm for persons with FTD, Alvin Holm, MD
Webinar link
Link to AFTD webinar bvFTD Subtypes: Divergent Anatomy, Divergent Behavior, Dr. Kate Rankin
Webinar link
Link to bvFTD Diagnosing, Staging
Link to diagnosing bvFTD
General information on FTD from NIH
Link to Frontotemporal information on NIH site
Letter I wrote to neighbors on diagnosis and what they could do to help.
Letter to neighbors
Teepa Snow talks FTD
May 2018 Teepa Journal
Teepa Snow recorded webinars
Teepa Snow Webinars
Link to GREAT explanation on lack of empathy in FTD!
https://www.youtube.com/watch?v=a_732-H1CUY&sns=fb
A young family affected by FTD
A Blog of a young family facing FTD
A podcast on what is FTD
What IS FTD??
UCSF explanation of FTD
Primer on FTD
New tool for diagnosis may be coming.
Research on new diagnostic tool